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UID:20251105T102959EST-1642FUHOxj@132.216.98.100
DTSTAMP:20251105T152959Z
DESCRIPTION:The ºÚÁÏÍø Research Group on Health and Law (RGHL)\, in collabo
 ration with the Centre for Genomics and Policy\, is pleased to invite you 
 to Ethical\, Legal and Social Considerations on Precision Medicine in the 
 Republic of Korea.\n\nThe seminar will be presented in English by Dr. So Y
 oon Kim\, Professor of Medical Law and BioEthics at the College of Medicin
 e at Yonsei University\, Seoul\, South Korea. It will take place on Thursd
 ay\, January 11\, 2018\, from 12:30 to 14:00 in Room 3M-48\, Strathcona Bu
 ilding\, ºÚÁÏÍø (3640 University\, Montreal). \n\nAbstract\n\nK
 orean biobanks are now changing to integrate the new paradigm of precision
  medicine into their fundamental role of promoting health technology. Sinc
 e the enactment of Bioethics and Safety Act in 2004\, the Republic of Kore
 a has developed a regulatory framework that reflects ethical principles. H
 owever\, the regulation of biobanks has recently proven to be limited in r
 esponding to newer ethical and legal issues that have arisen. First\, as t
 here is an emerging trend for human biospecimens to be stored\, managed an
 d distributed as digitalized data\, the current role of the Distributive R
 eview Committee may become less important compared to the Data Access Comm
 ittee. Second\, even if public health data is anonymised\, the risk of ide
 ntifiability is growing. This makes a third point relevant\, informed cons
 ent is crucial to respect the autonomy of patients and research subjects\,
  but current consent rules need to change to reflect the interactive and d
 ynamic communication process\, increasingly being realized in Information 
 and Communication Technology (ICT). Fourth\, even though data sharing for 
 research is expected to be altruistic and the sale of human biospecimens a
 nd genome data remains prohibited\, current data sharing practices have be
 come more complicated\, and are closer to commercial use and commercialisa
 tion. Given these challenges\, continuing and deeper deliberation must be 
 carried out in order to develop a more comprehensive and responsive govern
 ance framework.\n\nThe event is free\, but registration is obligatory as s
 paces are limited. Kindly RSVP to rghl.law [at] mcgill.ca. A light lunch w
 ill be served.\n\n \n
DTSTART:20180111T173000Z
DTEND:20180111T190000Z
LOCATION:Room 3M-48\, Strathcona Anatomy and Dentistry Building\, CA\, QC\,
  Montreal\, H3A 0C7\, 3640 rue University
SUMMARY:Ethical\, Legal and Social Considerations on Precision Medicine in 
 the Republic of Korea
URL:/law/channels/event/ethical-legal-and-social-consi
 derations-precision-medicine-republic-korea-283693
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